I've was looking at some of the entries from this last spring, and was reminded that I experienced respiratory problems, dizziness, shortness of breath, and throat swelling then, too. Ultimately it went away and the assumption was that those symptoms were caused by a drug allergy, and I stopped taking that particular new drug.
However now that I've had another bout of the same symptoms I have to question whether it was an actual drug allergy at all. Of course the symptoms could be related to environmental allergies (pollen in the spring and ragweed in the fall, augmented by the fact that I have two cats), but we just don't know. As you saw in my last post, I'm currently working with my doc to figure it out.
I posted some blood pressure data I was collected but I'm not going to post all of it because I collected 150 data points! The purpose of it was to see if my home bp unit correlated to the doctor's reading of my bp, and to see if there were specific times (of day, sitting or standing, etc.) when the symptoms were worse, and when it might be reflected in my bp and/or heart-rate. Here's a non-numbers summary of my at-home readings:
- My blood pressure sitting* is on the low end of the good range (106/68 on average).
- My blood pressure standing** is about 15 points higher than sitting, but still perfectly fine (119/83).
- My heart-rate when sitting is fine (83).
- My heart-rate on standing is very high (129 on average, with some numbers up to 145).
*Sitting usually means with my feet elevated in a reclining chair.
** Standing usually means after a short period (5-10 minutes) of easy activity.
And here were the other tests run to figure out why this accelerated heart-rate on standing:
- EKG - Normal
- Chest X-Ray - Normal
- Overnight Oxygen Study - No signs of sleep apnea
- Pulmonary Diagnostic - excellent result (those 4 months of swimming 1 kilometer 3x per week has paid off in increased lung power).
- Thyroid evaluation (scheduled for 12/11/2013)
I saw my doc to review the data to date, and his next focus is on my - eek! - heart. I'm going to wear a monitor for two days that will be like running a continuous EKG to see if there are random or specific times when my heart goes to a tachyia rhythm (accelerates out of the blue).
The doc can listen to your heart in the office, and take an EKG, but these are just snap-shots in time, and don't give a pattern of occurrence. Of course since I seem to have had episodes like this in the past that were there for a while, then gone, there's no assurance it will show up in the two-day test. If nothing shows up, they'll have to do a more detailed evaluation with a heart specialist in order to either pin down the cause, or at least to eliminate it from the list.
It's so ironic that as time passes post-transplant I've undergone periods of euphoria (always following the all-clear on a recent PET scan) to periods of anxiety (any time symptoms of any sort appears and my imagination runs wild). Now I get to add things besides cancer to the anxiety list! Oh well, I guess that's just life. Still, it's so irritating!
Okay, so I'll pick up the monitor early this week, wear it for two days, then turn it in so the data can be downloaded and sent to my doc. On the 11th I'll see the endocrinologist so he can evaluate my thyroid to see if it's playing a part (the recent blood work indicates it's not, but he'll do a lot more stuff, no doubt). My recent blood-work all looks pretty good, as a matter of fact, but there are some things that blood-work doesn't catch, and my doctor isn't going to ignore a racing heart. I remember that early on, before my Lymphoma was diagnosed I had episodes of tachycardia, and that they were finally correlated to a hyperthyroid (fast) condition, which ultimately converted to a hypothyroid condition (slow). I now take medicine to speed up my thyroid, but so far my numbers are in the acceptable range. We'll see if that pans out over a more exhaustive test.
I don't have a fitness update for the month, since I avoided exercise during this time. I had a doctor's appt. the day after Thanksgiving and my weight was up 3 lbs! However it was 3 lbs. lower a week before, so hopefully that's just a Thanksgiving eating marathon swing that will disappear over the next week or so. Luckily my doc has told me that I can start up my exercise routine again, but only in a moderate way, and to stop if I start feelings the effects of a racing heart. Swimming is probably perfect, but I think I'll stick to my recumbent bike for the moment, and avoid going out in the cold for the time-being, till the other tests are done.
Oh yeah, my monthly INR (for blood thinner protocol) was perfect, at 2.5, so no changes there.
Okay, another update to follow soon!