Tuesday, November 19, 2013

Status Update: Nov. 19, 2013

From my 11/14 list of things to do before my follow up visit with my primary care doc:

  1. EKG - done (looks normal)
  2. Chest X-Ray - done (looks normal, but results not finalized yet)
  3. Overnight oxygen readings - done (data will be transferred to my doc when I return the device)
  4. Blood Pressure and Heart Rate readings - on-going (see data below).
  5. Pulmonary Diagnostic - Scheduled for Thursday, Nov. 21
  6. Calibration of my home/wrist BP unit - when I meet with my doc on 11/29
  7. Endocrinologist appt - Dec. 11, 2013

I've been taking multiple blood pressure and heart rate readings each day for the past week, and will continue to do that until I meet with my doc on 11/29.

A 'good' BP reading is 120/80 (systolic/diastolic) and on my home device I'm commonly getting 97+/-10 systolic, and 65+/-5 diastolic now.  If my home/wrist unit is reading accurate or high, this is definitely a problem, since my readings are 20 points lower than average.

Either my home/wrist unit is really reading wrong, or my BP is too low.  In order to compare to someone else, I've had my mom read hers on my unit a couple times a day.  She has chronic low blood pressure, but her readings are higher than normal on this unit (higher than at the docs), and yet also higher than mine.  This indicates to me that a) my device isn't accurate (it's reading high), and b) my BP may actually be lower than the reading shows, which is definitely a problem.

Another big problem is that my resting heart rate is fine (80-90) but my standing heart rate is high (125-145).  This would explain why I'm getting dizzy and short of breath upon standing/walking, etc.  The other symptom I'm commonly experiencing is a tightness in my throat, from under my chin, through the curve of my throat.

I'm hoping that a change to my current BP med (either in type or dose) will address all of these problems.

I'll update again within a couple of days as more data is collected - most likely after the Pulmonary diagnostic so that I can tell you about that test during this cycle.

Here's my blood pressure and heart-rate data collected so far:

Notes: 1. Several readings are those of my mother to use in comparing/contrasting to my own, and the
calibration of the home/wrist unit.  My mother has low blood pressure problems, and has had
several medical incidences that required urgent care, the emergency room, and hospital.
2. Standing = after activity, Sitting = usually with my feet up in a reclining chair.
Time BP HR Comments
11/13/2013 10:00 125/85D 105 Standing
12:00 110/70 75 Sitting
17:15 111/66 71 Sitting
17:30 107/72 78 Sitting
Mom: 17:30 125/80 95 she's typically 110/60-70 (w/low bp problems)
18:30 125/78 83 Sitting
20:00 135/77 134 Standing
11/14/2013 8:00 ? high Note: Waking up, I could feel my heart beating pretty fast.
8:25 104/84 120 Standing Morning chores
9:30 127/82 76 After coffee
Mom: 9:45 110/83 93 After climbing stairs
12:56 134/79 78 Standing
16:50 99/79 80 Arm/wrist sl. Lower than heart
16:50 127/68 78 Arm/wrist raised to heart level
16:50 129/66 75 Arm/wrist raised to heart level
Mom: 18:30 126/82 105 Much higher than her norm
20:50 109/69 80 Sitting
Note: Generally sitting for me is in a reclining chair with my feet elevated.
Note: If it's reading high on mom's then it's prob. Reading high on mine.
Mom typically has low bp, and was in ER once because hers tends to lower when she's active,
when she's standing, etc.  She's typically 100/60, HR=82-83 at the docs.
11/15/2013 8:30 124/72 77 Standing but took test sitting (after morning chores)
9:50 101/69 77 Sitting
Mom: 9:50 106/76 105 Sitting
Mom: 11:00 97/66 90 Sitting
11:00 114/70 82 Sitting
19:30 104/62 82 Sitting Usually take my bp med in the AM, but forgot till 17:30
21:30 106/69 80 Sitting
Note: The tightness in my throat/neck usually gets worse toward evening.
Question: Is Pulmonary Hypertension a possibility?  My symptoms and readings are in line with it,
including the hyper-sensitive/sore/bruised-feeling legs.
11/16/2013 9:50 108/81 145 Standing Morning chores, took Flonaise & ProAir after reading.
10:00 103/62 73 Sitting 10 minutes rest time from last, standing reading.
Mom: 10:10 99/71 110 Standing
12:15 110/71 91 Sitting
16:45 129/76 96 Standing Tightening of the throat appearing late in the afternoon
18:45 Used Flonaise - tightness in throat reduced.
18:55 103/67 86 Sitting After Flonaise
20:15 109/70 82 Sitting
21:40 136/76 92 Standing
11/17/2013 8:50 125/94 137 Standing Morning chores
9:00 107/71 78 Sitting Used Flonaise and ProAir after reading
9:15 97/75 80 Sitting 15 minutes after Flonaise and ProAir
9:50 98/73 79 Sitting Finished first hour cycle
Mom: 10:00 107/58 70 Standing (sat to do reading)
13:15 99/60 82 Sitting
Mom: 14:15 100/78 104 Sitting
14:50 130/87 133 Standing Slight tightening throat, slight headache.
17:00 99/69 83 Sitting Symptoms of 14:50 dissipating now.
18:00 108/69 85 Sitting Took daily Warfarin (5 ml.)
20:00 101/66 86 Sitting Took evening Flonaise and ProAir after reading.
20:15 111/65 87 Sitting
21:00 102/71 89 Sitting
23:20 102/68 83 Sitting
11/18/2013 1:00 107/68 81 Sitting Throat feeling tighter, slight headache.
9:40 131/86 133 Standing Morning chores
9:50 107/69 80 Sitting Used Flonaise and ProAir after reading
10:10 97/69 88 Sitting 20 minutes after Flonaise and ProAir
10:40 103/70 87 Sitting Finished first hour cycle
11:05 130/81 132 Standing Post-shower and dressing
Mom: 11:05 100/66 96 Sitting
11:25 106/70 96 Sitting Left to run errands, grocery shop, etc. after.
13:10 Errorx10 V. Fast Standing Couldn't get a reading - too high/low for home unit?
13:20 101/70 109 Sitting Finally able to get a reading after sitting for 5-10 min.
14:00 97/66 93 Sitting Used ProAir after reading
14:05 98/65 90 Sitting 5 minutes after ProAir
16:00 108/62 86 Sitting ~20 minutes after eating.
18:00 107/75 91 Sitting
Mom: 19:50 107/80 95 Sitting from standing
20:20 105/70 92 Sitting Used Flonaise and ProAir after reading
20:30 98/62 90 Sitting 10 minutes after Flonaise and ProAir
11/18/2013 8:30 113/80 123 Standing Morning chores (out of Claritin)
8:50 97/65 83 Sitting Used Flonaise and ProAir after reading
9:05 98/61 83 Sitting 15 minutes after Flonaise and ProAir
9:30 87/67 78 Sitting Finished first hour cycle
10:10 101/71 84 Sitting
11:40 97/61 91 Sitting Tightness under chin/curve of throat
14:10 98/67 80 Sitting ~20 minutes after eating, used ProAir after reading.
14:50 99/66 87 Sitting Still tight under chin/throat.

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